Research teams across Canada now have access to an interactive French-language ‘road map’ to guide patient engagement in a health research project.
Continue reading “Interactive ‘road map’ for patient-oriented research teams now available in French”
After Allison Kooijman got an unnecessary medical procedure that left her disabled, she used her experience to help patients and care providers heal together after harm.
Continue reading “A woman’s journey from patient harms to restoring trust in health care”
There’s no single known cause for myalgic encephalomyelitis, also known as chronic fatigue syndrome. And there’s no cure. That’s why patient partner, Kati Debelic, worked with neuroimaging scientist, Xiaowei Song, to seek answers.
Continue reading “Brain imaging research brings new hope for people with life-altering condition”
People using data in BC will benefit from expanded access to a data management tool: REDCap.
Continue reading “Data tool now available for more BC health projects”
This week, a new organization launches to support researchers across Canada who engage patients in their work: SPOR National Training Entity.
Continue reading “Researchers get a career boost from new national platform”
During the pandemic, only 60 percent of people in custody wanted to receive the COVID-19 vaccine. Researchers Sofia Bartlett and Pam Young worked with people who are incarcerated to change that.
Continue reading “Making a real difference: People who are incarcerated help peers get immunized for COVID-19”
How does frequent fainting affect people’s daily life? Researchers in the Fraser region worked with patient partners to find out.
Continue reading “It isn’t just a simple faint: Patients weigh in on negative effects of recurrent fainting episodes”
The Methods Clusters researched the “how” of patient-oriented research for 5 years. What did we learn? What questions remain? Amber Hui, Stirling Bryan and Danielle Lavallee discuss.
Continue reading “The Methods Clusters: Lessons in methods research”
Patients are often overlooked when designing health research projects. Researchers in BC wanted to change that.
Continue reading “Patients change how we do research, move hearts and minds”