POR is an increasingly popular approach to research, involving meaningful partnerships with patients to improve the relevance and use of research. There is an increasing focus on how teams can best support partnerships, including fair compensation for patients partners and greater openness about research funding practices. This is particularly important when research is funded by private companies or donors, as COI can arise and may affect the ethical conduct or quality of the research.
A COI can happen when a research team member stands to gain status or financial advantages as a result of a research partnership and teams are faced with the need to find ways to address these. However, little is known about how to manage COI in POR. Our previous research has explored the research literature, as well as the perspectives of those engaged in POR. We found few examples of how COI can be managed and a need for practical resources and tools. In this planned research, we will work together to create a guidebook, including resources and tools, to help POR teams identify and manage COI. Designed to reflect needs of diverse audiences, we will share these widely to raise awareness, support best practices, and evaluate its usefulness.
Team members: Marc Bains (HeartLife); Stirling Bryan (BC Academic Health Science Network); Alison Hoens (UBC); Michelle Mujoomdar (Canadian Agency for Drugs and Technology); Trina Fyfe (University of Northern British Columbia); Iva Cheung (Freelance); Erin Michalak (UBC and BC SUPPORT Unit); Justin Otteson (BC SUPPORT Unit); Haydn Molcak (UBC); Daman Kandola (University of Northern British Columbia); Jennifer Brown (UBC); Nassim Adhami (University of Northern British Columbia); Shayna Dolan (University of Northern British Columbia)