Patients’ experiences of engaging in health research: partners in the dance
March 31, 2017
Speaker
Sheila Kerr & Kelly English, Arthritis Patient Advisory Board, Arthritis Research Canada
Objectives:
- Describe the development and roles of a patient advisory board within a health research organization
- Discuss opportunities and challenges in partnering with patients in research priority setting, data collection and KT
- Illustrate the process of peer-to-peer mentoring for patient partners in health research
Resources
- Presentation Slides (PDF)
- About Arthritis Patient Advisory Board of Arthritis Research Canada
- Plain language research summaries (written using a template created by Arthritis Patient Advisory Board)
- Arthritis Research Canada quarterly newsletters
- Reaching Out with Arthritis Research Public Forum 2011-2016 (videos)
- It IS About Us: Patient Engagement in Health Research (report)
Upcoming webinar
Dr. Shannon Freeman
Date
December 06, 2024
Aging well with open science: how a partnered approach to implementation can enhance equity and outcomes
In 2024, KT Connects is focusing on open science — the practice of making scientific inputs, outputs, and processes freely available to all with minimal restrictions. Learn more.
Webinar summary
Friday, December 6
12 – 1 p.m. PST
Can open science improve outcomes for older adults and caregivers in rural and northern communities?
The Centre for Technology Adoption for Aging in the North (CTAAN) works to make AgeTech—technology designed to support older adults—more accessible to older adults, caregivers and health systems in these communities. CTAAN is part of AGE-WELL, a national network focused on improving aging through technology. The centre tests, pilots and promotes solutions specifically designed to meet the needs of these regions.
Join Dr. Shannon Freeman, academic director of CTAAN, where she will share how open science supports engaged research, where researchers work alongside older adults, communities and health systems partners to ensure that their needs are met.
Dr. Freeman will give practical examples from CTAAN, including real-life AgeTech solutions where open science use is improving outcomes for older adults and caregivers in rural and northern communities.
Learning objectives
After this webinar, the audience will be able to:
- Understand how open science supports collaboration between researchers and communities
- Recognize the principles of engaged research and its role in addressing community needs
- Identify strategies and examples of how open science can be integrated into research priorities
Speaker’s bio:
Dr. Shannon Freeman is an associate professor in the School of Nursing at the University of Northern British Columbia (UNBC). She has expertise in the health and social care needs of older adults in rural and northern communities, including those living in the community and those living in long-term care. She led the way in developing UNBC’s Centre for Technology Adoption for Aging in the North, an AGEWELL national innovation hub. The centre focuses on improving, implementing and evaluating technology to support older adults in rural and northern communities. Dr. Freeman is a Health Research BC 2020-2025 Scholar.