Citizen Science: An approach to engage the public and co-develop novel research questions

October 06, 2023

Speaker

Dr. Codie Primeau, postdoctoral fellow, Arthritis Research Canada and University of British Columbia

Health researchers typically rely on input from other researchers, clinicians and academic literature when designing their research. This traditional approach overlooks valuable contributions from patients and the wider public. The consequence of this is that people with lived experience, especially those from frequently underrepresented communities, have little say in what research questions are asked and prioritized. Enter Citizen Science: an approach to health research that promotes research co-creation to address community needs.

In this webinar, Dr. Codie Primeau will introduce Citizen Science, an innovative approach that actively involves members of the public through multiple stages of the research process. Codie will explain how the approach supports researchers and the public in co-designing novel research questions.

The primary focus of this webinar will center around Codie’s demonstration project, which uses an online Citizen Science platform to engage with the public and guide the co-development and co-prioritization of research questions and priorities meaningful to individuals from 2SLGBTQIA+ communities who experience chronic pain.

Don’t miss this unique opportunity to engage in a conversation about making research more inclusive and community driven.

After this webinar, the audience will be able to:

  • Understand how Citizen Science can enhance public engagement in health research.
  • Learn how Citizen Science can actively involve patients and the public in co-creating research questions that are important for the communities they impact.
  • Discuss how Citizen Science has the potential to revolutionize traditional research practices, break down barriers to inclusivity in research, and support participation from diverse populations that have often been underrepresented in research.

Speaker

Dr. Codie Primeau (he/him) is a postdoctoral fellow at Arthritis Research Canada and the University of British Columbia, supported by a Michael Smith Health Research BC Research Trainee Award. He completed a combined MPT (clinical physiotherapy) and PhD in Health and Rehabilitation Sciences from Western University, with research interests spanning osteoarthritis, physiotherapy, orthopedics, health economics, and 2SLGBTQIA+ health. His graduate studies focused on clinical trials and observational research, evaluating interventions for knee osteoarthritis. He also completed work focused on evaluating health education and inclusion for physiotherapists when working with 2SLGBTQIA+ individuals. His postdoctoral work uses an online platform rooted in principles of Citizen Science to engage with the 2SLGBTQIA+ community and work collaboratively to co-develop research priorities related to pain. This work includes fostering collaborative research aligned with the needs and perspectives of the 2SLGBTQIA+ community.

Resources

Upcoming webinar

Dr. Femke Hoekstra

Date

June 28, 2024

Transforming spinal cord injury counselling with open science and integrated knowledge translation

In 2024, KT Connects is focusing on open science — the practice of making scientific inputs, outputs, and processes freely available to all with minimal restrictions. Learn more

Webinar summary

Friday, June 28 

12 – 1 p.m. PST 

Open science practices provide the foundation for transparent and accessible research. Integrated knowledge translation (IKT) ensures that research is meaningful and useful in real-world settings. By combining these approaches, researchers can maximize the impact and relevance of their findings.  

In this presentation, Dr. Hoekstra will share example strategies and practical tips for using open science principles and IKT. She will use a practical example from co-developing and evaluating an e-learning course on spinal cord injury (SCI) physical activity counselling. The free, self-guided e-learning course is created for health and fitness professionals providing guidance or counselling to adults with SCI. 

Learning objectives

After this webinar, the audience will be able to:

  1. Explain how the principles of open science and IKT can complement each other
  2. Learn strategies on how to apply IKT principles to co-develop and evaluate an educational course for health and fitness professionals
  3. Provide examples of how to apply open science practices

Speaker bio

Dr. Femke Hoekstra is an assistant professor in UBC’s Department of Medicine, Division of Social Medicine and an investigator with the Centre for Chronic Disease Prevention and Management in implementation science. Dr. Hoekstra holds a doctor of philosophy from the University of Groningen in implementation science, rehabilitation and physical activity promotion. Her research program focuses on improving health services and care for equity-deserving groups in rural, remote and isolated communities. She studies implementation processes of health innovations in real-world settings.