Co-lead:
- Sarah Cockell
Providence Health Care Heart Centre
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Team members:
- Manisha Tilak
UBC
- Kim Vopni
- Sarah Munro
UBC
- Trish Gipson
- Adrienne Sim
- Terry Lee
Centre for Health Evaluation and Outcome Sciences
- Nicole Koenig
UBC
- Melissa Nelson
UBC
- Nicole Prestley Stuart
UBC / Women's Health Research Institute
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The pelvic floor is at the bottom of a woman’s belly and supports vagina, bladder, bowel and womb in their daily functions. It is made of muscles and strong surrounding tissues. Pregnancy, childbirth and the few months after are times of rapid change for the pelvic floor. A woman’s body naturally adapts to pregnancy and tissues are able to stretch, but the baby’s passage through the birth canal can sometimes cause lasting damage to the mother’s pelvic area. This can lead to urine, stool or gas leaking, vaginal bulging, poor body image, loss of vaginal sensation, pain and avoidance of sex. Fifty percent of aging women have pelvic symptoms, which may disappear gradually or last a long time.
There is a lot of misinformation about this. Women often don’t talk about it because of embarrassment. Our team recently completed grant-funded studies showing that:
- Online information is often incorrect
- Pregnant women are poorly informed
- We can successfully enhance prevention through a workshop
We created animated videos and plan a dedicated website to inform women about how to best care for the pelvic floor in pregnancy and beyond. We aim to to raise awareness of pelvic floor health, prevention and treatment options.
Co-lead:
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Team members:
- Alexa Norton
FNHA
- Namaste Marsden
FNHA
- Kate Jongbloed
FNHA
- Riley Bizzotto
FNHA
- Jennifer Murray
FNHA
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In 2019, the FNHA partnered with the International Journal of Indigenous Health to release a special Guest Edition titled "Health Systems Innovation: Privileging Indigenous Knowledge, Ensuring Respectful Care, and Ending Racism towards First Nations in Service Delivery.” This proposal describes a series of knowledge translation (KT) activities that will bring wider awareness to the edition and will result in a timely and relevant KT tool. Through a Virtual Launch of the FNHA Guest Edition, we will showcase the range of submissions by Indigenous researchers and allied collaborators and engage in dialogue about how to best translate this information so that it is relevant and useful for Indigenous people and communities. Armed with insight about how to best translate and disseminate the FNHA Guest Edition, we will collaborate with Indigenous creatives (for example artists, filmmakers or digital storytellers) to develop and disseminate a KT tool for building capacity in community. By engaging in community-defined KT, we help to ensure that the findings and knowledge assembled within the Guest Edition are appropriately translated and will be of value to Indigenous people and communities.
Co-lead:
- Valerie Nicholson
BC Centre for Excellence in HIV/AIDS
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Team members:
- Allison Carter
SFU
- Lori Brotto
Women’s Health Research Institute
- Nicole Prestley
Women’s Health Research Institute
- Melissa Nelson
Women’s Health Research Institute
- Juno Roche
Sophia Forum
- Edmond Kilpatrick
SFU
- Florence Anam
Africa for MSF
- Marvelous Muchenje
ViiV Healthcare
- Azra Bhanji
SFU
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People who have an undetectable viral load cannot transmit HIV during condomless sex. However, women living with HIV continue to face HIV-related stigma. “HIV Made Me Fabulous” is a short film (https://youtu.be/QamnyGc0gtY) grounded in current HIV science that invites audiences to understand the physically and emotionally charged experience of living and loving with HIV from a woman’s perspective. This project aims to disseminate the film to advance public understandings of sexuality and HIV, to reduce HIV-related stigma and improve the health of women living with HIV.
Our team will:
- Host four virtual film screenings and facilitated discussions, and assess impacts among priority target audiences (i.e. women with HIV, providers/policymakers, the general public).
- Use findings from the screenings to develop a film discussion guide to support others (e.g. HIV support groups, care providers, gender equity leaders) to screen the film and facilitate safe, informed, and evidence-based discussions.
- Widely disseminate the film and discussion guide via YouTube, social media, and community/academic forums. Mixed methods will be used to evaluate the reach and impact of this innovative, arts-based, technology-driven KT project.
Co-lead:
- Theresa Healy
UNBC Health Research Institute
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Team members:
- Magda Aguiar
UBC
- Glory Apantaku
UBC
- Lara Frederick
Northern Health
- Kim Jong
Northern Health
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We aim to create a website that health economics researchers, policy makers and Northern BC community members can use to explore issues related to resource allocation in the north, to interact with each other and generate new aligned research questions. We are merging health economics research with arts-based research to expand the reach of the and impact of our research activities and attract the attention of diverse audiences.
We will use qualitative methods to explore how contextual factors in rural and remote settings in Northern BC might challenge common assumptions of efficiency, imply different priorities and what this means for health economics methods. We will combine traditional qualitative methods of data collection — focus groups — with novel, arts-informed research to fully represent diverse ways of knowing and experiencing the world, and build relationships with rural communities that goes beyond academic inquiry. In the context of rural and remote health, visual ways of expression will create more impactful results and emphasize unique challenges people face in accessing health care such as scarcity of resources, low population density and isolation, which may not be appreciated by those living in urban settings.
Co-lead:
- Jody Jollimore
Community-Based Research Centre for Gay Men's Health
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Team members:
- Roz Queen
UVIC
- Marcy Antonio
UVIC
- Kelly Davison
Canada Health Infoway
- Karen Courtney
UVIC
- Aaron Devor
UVIC
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In this REACH project, we will share our prior research and engage stakeholders to discuss A) how our prior research output can address the needs of sexual and gender minorities (SGM) through improved gender, sex and sexual orientation (GSSO) documentation in electronic health records (EHRs), and B) how the prior output and action plan may be transformed into setting-specific knowledge tools.
Our research team worked with Canadian stakeholders to improve the definition, collection and use of GSSO data in EHRs and generated the following outputs:
- An environment scan of how GSSO data are defined in EHRs
- Literature reviews of GSSO documentation — current approaches, gaps, needs and improvement efforts
- GSSO terms people commonly use to identify themselves
- An action plan with a set of broad, equity-oriented clinician-focused interventions to improve GSSO documentation in EHRs
In partnership with the Community-Based Research Centre, we will translate these findings into appropriate media and forms for dissemination to our diverse stakeholder groups. The expected outcomes of this project are enhanced dissemination to stakeholders and SGM-tailored knowledge translation tools in different healthcare contexts in BC.
Co-lead:
- Mike Hooker
BC Ministry of Education
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Team members:
- Alisa Almas
HELP, UBC
- Joanne Schroeder
HELP, UBC
- Sally McBride
HELP, UBC
- Katherine Brown
Rural and Remote Division of FP
- Anita Ely
Interior Health
- Jill Zacharias
City of Revelstoke
- Nicole Dawydiuk
HELP, UBC
- Tracy Spannier
Associate Executive Director
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Revelstoke, a rural community in the Interior of BC, has had some of the best developmental health outcomes for children and youth in BC over time, as measured by HELP’s population level monitoring system. Through the project, data sets will be aligned across age groups and over time to explore the contribution of community resilience to maintaining positive outcomes, particularly post-COVID-19.
Co-lead:
- Jessica Sutherland
BC Women's Hospital & Health Centre
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Team members:
- Heather Noga
Women's Health Research Institute
- Kiran Parmar
UBC
- Natasha Orr
UBC
- Rebecca Coxson
UBC
- Sarah Lett
Mass Velocity
- Endometriosis Patient Research Advisory Board
BC Women's Centre for Pelvic Pain & Endometriosis
- Catherine Allaire
BC Women's Hospital
- A. Fuchsia Howard
UBC
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Endometriosis is a debilitating disease characterised by tissue similar to that from inside the uterus growing outside the uterus affecting ~10% of females. Chronic pain, menstrual pain, infertility and painful sex are common, but endometriosis often goes undiagnosed for years due to stigma and normalization of symptoms. Painful sex can be particularly challenging to discuss with partners and healthcare providers. Imagine fearing intimacy, ridicule, degradation of relationships and an inability to conceive because sex is too painful and having limited resources for validation and trustworthy information.
Over the last 10 years, the Endometriosis Pelvic Pain Laboratory has built a patient-oriented research program with over 70 scholarly publications. In 2018, we established a multidisciplinary team to design an online educational resource. The Sex, Pain & Endometriosis website, launching in Fall 2020, provides a respectful, inviting and visually appealing environment of evidence-based information. The proposed campaign will create awareness of this resource and establish the site within the endometriosis community. Success will be determined by website visits and measured by tracking online engagement and visitor metrics.
Co-lead:
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Team members:
- Sarah Munro
CHÉOS
- Lori Brotto
Women’s Health Research Institute
- Marina Adshade
UBC
- Shirley Weir
Menopause Chicks
- Patricia Tomasi
Canadian Perinatal Mental Health Collaborative
- Melissa Nelson
Women’s Health Research Institute
- Bonnie Vockeroth
UBC
- Victoria Gay
BC Women’s Foundation
- Vanessa Hrvatin
Centre for Brain Health
- Bonnie Lee
UBC
- Lesa Dawson
Memorial University
- Beverley Pomeroy
BC Support Unit
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The proposed project will provide opportunities for multidisciplinary trainees to develop and strengthen their science communication skills by learning from experts and gaining hands on experience translating knowledge using multiple mediums—a women’s health podcast, video series and blog. These KT products will draw attention and dispense knowledge to the public and the scientific community about women’s health research. Why is this important to convey? Although funding agencies mandate the inclusion of both sexes, women’s health is much more than how they differ from men. Women’s health is directly influenced by physiological and societal challenges that are unique to women. There is a critical need to convey how different physiological experiences (menstruation, pregnancy, menopause) influence women’s health and how gendered experiences and expectations drive disparities in women’s health (e.g. greater misdiagnosis in women compared to men). For example, oral contraceptives influence depression risk depending on a woman’s age or whether she is pregnant, postpartum or menopausal, as these factors differentially influence drug efficacy. MSFHR funding will provide payments for research users and trainees to produce outputs.
Co-lead:
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Team members:
- Nicole Prestley
Women’s Health Research Institute
- Lori Brotto
Women’s Health Research Institute
- Helena Abreu do Valle
UBC
- David Huntsman
UBC
- Lien Hoang
UBC
- Jessica McAlpine
UBC
- Anna Tinker
UBC
- Siv Klausen
Patient partner
- Debra Walker
Patient partner
- Rose Au-Yeung
Patient partner
- Justine Greene
General public
- Samyak Sah
SFU
- Gina Ogilvie
UBC
- Laurie Smith
UBC
- Stephanie Lam
UBC
- Gavin Stuart
UBC
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Patients with gynecologic cancer have articulated a strong desire for accessible research evidence. We are proposing to work with patients to develop five short videos on gynecologic cancer covering topics in prevention, diagnosis, treatment and living well with, and beyond, gynecologic cancer. These videos will be ‘hosted’ by the patient partner, and will consist of recorded, structured conversations (taking place virtually using zoom) between a gynecologic cancer patient and a gynecologic research expert. Where necessary, additional information will be interspersed using PowerPoint slides and infographics to improve clarity and maximize evidence sharing. By having our patient partners ‘host’ these conversations, it will ensure that content is relevant to patients. We hope that these videos will improve the lives of gynecologic cancer patients in BC by:
- Making it easy for patients to access information on the research happening here in BC that is directly relevant to their cancer care and journey.
- 2) Increasing awareness of opportunities to participate in gynecologic cancer research in BC.
- Providing easy access to the stories and experiences of other gynecologic cancer patients.
Publication: Outcomes From Opportunistic Salpingectomy for Ovarian Cancer Prevention
Video: Beyond the Stories – Opportunistic Salpingectomy as a Strategy for Ovarian Cancer Prevention
Co-lead:
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Team members:
- William Honer
UBC
- Skye Barbic
UBC
- Sari Raber
Kilala Lelum
- Andrea Jones
UBC
- Melissa Woodward
UBC
- Jacob Stubbs
UBC
- Lianne Cho
UBC
- Christopher Siu
UBC
- Will Panenka
UBC
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Brain disorders are underappreciated, modifiable drivers of daily challenges. Our team’s research includes the ten-year observational Hotel Study, which engages Downtown Eastside (DTES) residents affected by precarious housing, and has found high rates and significant consequences of traumatic brain injury, stroke and mental illness. To engage the community during the COVID-19 pandemic, innovative knowledge dissemination activities are needed. The two-part Community Brain Art (CoBrA) initiative is co-created with residents, healthcare providers and researchers in the DTES. CoBrA aims to share local brain health research and community resources with DTES residents. First, we will co-design art kits with knowledge users, containing art supplies and brain health infographics. These kits will be distributed to residents to facilitate dialogue and visual expression of their experiences with brain wellness and injury. Submitted art and health resources will be shared on our website. Second, we will co-produce a mural with local artists to convey brain health recommendations. Reach and effectiveness will be assessed by kit participation, website access and pre- and post-engagement surveys by text message and peer-facilitated sessions.