Time

Session information

Format & location

8:00 a.m. – 8:45 a.m.

Registration

• In-person attendees must check in at the registration desk

Ballroom

Time

Session information

Format & location

8:50 a.m. – 8:55 a.m.

Initial welcome

• Kimberlyn McGrail, Scientific Director, Health Data Research Network Canada, Scientific Director Population Data BC, Associate Professor, school of population and public health at UBC

Ballroom,

Hybrid

8:55 a.m. – 9:15 a.m.

Opening prayer

• Elder Roberta Price

Ballroom,

Hybrid

9:15 a.m. – 9:30 a.m.

Welcoming remarks

Speakers:

• Victoria Schuckel, Executive Director, Research & Technology, Ministry of Health
• Monica Mamut, Unit Director, BC SUPPORT Unit
• Anni Rychtera, Swapnil Shah and Sherri Mytopher, patient partner representatives in BC

Ballroom,

Hybrid

Time

Session information

Format & location

9:30 a.m. – 10:30 a.m.

Keynote: Strategy for patient-oriented research: Vision and priorities for the future

This exciting Keynote will feature Amy Lang, the executive director of patient oriented research from the Canadian Institutes of Health Research (CIHR). Together with other attendees, you’ll learn about priorities for patient engagement and envision the future of patient-oriented research.

Speaker:

• Amy Lang, Executive Director of Patient Oriented Research, Canadian Institutes of Health Research

Facilitator:

• Laura McNab-Coombs, Indigenous Health Research Facilitator – Northern & Interior BC, BC NEIHR, University of Victoria

Ballroom,

Hybrid

Time

Session information

Format & location

10:30 a.m. – 10:45 a.m.

Break

Time

Session information

Format & location

10:45 a.m. – 11:45 a.m.

Breakout session #1a – Learning together: Building trainee capacity in patient-oriented research

Are you a trainee interested in patient-oriented research (POR)? Want to learn and discuss ways to improve the training experience in POR?

In this session, you’ll learn about challenges, opportunities and best practices for training the next generation of researchers in POR, drawing from real-world experiences and diverse perspectives. The speakers will also highlight collaborative strategies for capacity building in POR trainees.

Panel Chair:

• Kristen Haase, RN, PhD, Assistant Professor, school of nursing at UBC

Panel members:

• Joey Wong, PhD Student, school of nursing at UBC, and Project Assistant, UBC IDEALab
• Bonnie Leung, PhD Student, school of nursing at UBC, and nurse practitioner in oncology, BC Cancer
• Mario Gregorio, Patient Partner
• Lillian Hung, CNS, PhD, Assistant Professor, school of nursing at UBC, Canada Research Chair in Senior Care, and head of the IDEA (Innovation in Dementia & Aging) Lab

Organized by: Canadian Primary Care Research Network (CPCRN)

Ballroom,

Hybrid

10:45 a.m. – 11:45 a.m.

Breakout session #1b – Healthcare research planning: Transforming the dialogue through the inclusion of diverse community voices

This session will highlight the importance of expanding our approach to patient engagement in health care research and planning to include consideration of resident collectives through community engagement.

It will consider the importance of the inclusion of communities as a point of contact for research and policy, review engagement strategies through a diversity lens, and consider two applications in health service delivery in BC: Community Health Centres and Emergency Health Services.

Speakers:

• Jude Kornelsen, PhD, Co-Director, Centre for Rural Health Research, department of family practice at UBC
• Paul Adams, Executive Director, BC Rural Health Network
• Jane Osborne, Community Specialist in Adult Guardianship Legislation, Restorative Justice Association of BC Board, BC Rural Health Network Board, and volunteer with United Way CBSSS Rural & Remote Working Group
• Valerie St. John, Executive Director, BC Association of Community Health Centres
• Leanne Heppell, Executive Vice President & Chief Ambulance Officer, BC Emergency Health Services

Organized by: BC Rural Health Network

Port of San Francisco / New York,

Hybrid

10:45 a.m. – 11:45 a.m.

Breakout session #1c – Health data for all: How public engagement drives the work of Health Data Research Network Canada (HDRN Canada)

This session will highlight the different ways in which HDRN Canada engages with the public on issues related to health data. You will also have the opportunity to share your perspectives on the benefits and risks of health data collection, sharing and use.

Speakers:

• Julia Burt, HDRN Canada Public Engagement Fellow
• Jannath Naveed, Public Engagement Research Assistant
• Bill Pratt, Public Advisory Council Member

Organized by: Health Data Research Network Canada (HDRN Canada)

Port of Singapore,

Hybrid

10:45 a.m. – 11:45 a.m.

Breakout session #1d – Building knowledge together: Cultivating kinship with Indigenous Knowledge Keepers to engage in research and embody Indigenous measures of success at a kidney research network

This session will cover how Can-SOLVE CKD is working together with Indigenous Elders to respectfully engage Indigenous Elders and Knowledge Keepers in research and embody Indigenous measures of success.

The speakers will share learnings from working with Indigenous Knowledge Keepers and Elders in the Wabishki Bizhiko Skaanj learning pathway, and discuss the 6R’s of culturally relevant engagement as well as Indigenous measures of success.

Speakers:

• Jocelyn Jones, Indigenous Peoples Engagement & Research Council Coordinator, Can-SOLVE CKD
• Craig Settee, Cultural Competency Manager, Can-SOLVE CKD

Organized by: Canadians Seeking Solutions and Innovations to Overcome Chronic Kidney Disease Network (Can-SOLVE CKD)

Harbour III,

Hybrid

Time

Session information

Format & location

11:45 a.m. – 12:45 p.m.

Lunch

Time

Session information

Format & location

12:45 p.m. – 1:45 p.m.

Plenary: POR and EDI, challenges, and opportunities to shape a more equitable health care system

Join an inspiring plenary and envision how we can shape a more equitable health care system together. Harlan Pruden, Erin Michalak and Lydia-Joi Marshall will join in conversation to discuss patient-oriented research and equity, diversity and inclusion, and challenges and opportunities for the future.

Speakers:

• Lydia-Joi Marshall, Researcher & Health Equity Champion, President of the Board of Directors of the Black Health Alliance
• Erin Michalak, Professor, department of psychiatry at UBC, Co-lead of BC SUPPORT Unit Tapestry, and Member of the Executive Committee for the APEC Digital Hub for Mental Health
• Harlan Pruden, Indigenous Knowledge Translation, Indigenous health program at BC Centre for Disease Control, and Co-founder of the Two-Spirit Dry Lab

Facilitator:

• Amber Hui, Equity, Diversity & Inclusion Lead, BC SUPPORT Unit

Ballroom,

Hybrid

Time

Session information

Format & location

1:45 p.m. – 1:55 p.m.

Transition to breakout sessions 2

Time

Session information

Format & location

2:10 p.m. – 3:40 p.m. *

Breakout session #2a – From vision to reality: Envisioning the future of patient and public engagement in research

Ever wonder what the future of engagement will look like in research? Want to transform the system by bringing your vision to reality?

It all starts here. Come unlock the future of patient and public engagement in this hands-on, interactive workshop, where we will flex our future thinking mindsets and challenge the current state of engagement to inspire new opportunities.

We will build an understanding of change as we reflect on our systems and the how the drivers of transformation are interconnected. Lastly, we will co-build possible scenarios of what we want the future of patient and public engagement to look like.

Speakers:

• Yvonne Pelling, Patient & Community Engagement Lead and Patient Partner, PASSERELLE
• Audrey L’Espérance, Assistant Professor of Health & Social Services Management, École nationale d’administration publique (ENAP)

Organized by: PASSERELLE – SPOR National Training Entity

* Please note that this breakout session takes place from 2:10 – 3:40.

Port of Singapore,

Hybrid

1:55 p.m. – 2:55 p.m.

Breakout session #2b – Learning Health Systems in BC: An introduction and overview

This session will introduce the concepts and structure of Learning Health Systems (LHS) and two of the models currently used in Canada. Two case studies will be presented in the context of these models, which will be followed by questions and answers to invite a fulsome discussion on LHS practices and their future in BC’s health system.

Speakers: 

• Linda Li, Scientific Director, BC SUPPORT Unit, Harold Robinson/Arthritis Society Chair at the department of physical therapy, University of British Columbia, and Canada Research Chair in Patient-oriented Knowledge Translation
• Waqar Mughal, Program Director, Data, BC SUPPORT Unit
• Ross Duncan, Learning Health Systems Data Analyst, BC SUPPORT Unit

Facilitator:

• Stirling Bryan, Chief Scientific Officer, Health Research BC

Organized by: BC SUPPORT Unit Vancouver Centre

Ballroom,

Hybrid

1:55 p.m. – 2:55 p.m.

Breakout session #2c – Co-creating knowledge translation products related to pregnancy loss and bereavement

This session will include presentations on two projects: one on co-creating a podcast to support parents who have experienced stillbirth and another on improving access, understanding and dignity during miscarriage recovery.

After the presentations, you’ll be able to participate in an interactive discussion about lessons learned from co-creating knowledge translation products and the essential partnerships with people with lived experience.

This session will be of particular value to those interested in conducting and participating in patient-oriented research related to sensitive and difficult topics such as pregnancy loss and bereavement.

Presentation 1 – Co-producing a podcast to support parents who experience stillbirth

Speakers: 

• Jaime Ascher, Hummingbird Project Co-investigator, and Patient/Parent Partner
• Lana Sullivan, Hummingbird Project Research Manager & Co-investigator, and Project Manager, BC Women’s Hospital & Health Centre

Moderator:

• Ann Pederson, Director, Population & Global Health, BC Women’s Hospital & Health Centre, and Hummingbird Project Principal Investigator

Presentation 2 – Improving access, understanding, and dignity during miscarriage recovery in British Columbia

Speaker: 

• Rana Van Tuyl, Research Associate, Royal Roads University, and Miscarriage Recovery Project Principal Investigator

Organized by: BC SUPPORT Unit Island Centre

Port of San Francisco / New York,

Hybrid

1:55 p.m. – 2:55 p.m.

Breakout session #2d – Putting residents first: The power of engagement

In this session, the speakers will share first-hand experiences of the power of engagement and factors contributing to sustainable, partnered approaches to research in long-term care and assisted living.

You’ll also learn about a co-created research priority setting process to identify timely, impactful and relevant topics for research in long-term care and assisted living.

Speakers:

• Fraser Health Long-Term Care and Assisted Living Research Partners Group
• Janice Sorensen, Leader, Clinical Research, Long-Term Care & Assisted Living, Fraser Health Authority
• Kirsten Rossiter, Regional Practice Lead in Research & Knowledge Translation in Long-Term Care, Fraser Health Authority
• Sherin Jamal, Research Associate, Long-Term Care & Assisted Living, Fraser Health Authority

Organized by: BC SUPPORT Unit Fraser Centre (Long-Term Care Research Partners group)

Harbour III,

Hybrid

Time

Session information

Format & location

2:55 p.m. – 3:10 p.m.

Break

Time

Session information

Format & location

3:10 p.m. – 4:10 p.m.

Breakout session #3a – Applications of Indigenous cultural safety frameworks in patient-oriented research

This session will define cultural safety and humility, situate Indigenous history in “research”, explain why principles of JEDI (justice, equity, diversity and inclusion) are not sufficient for Indigenous peoples, and highlight relevant topics and frameworks to consider when integrating Indigenous cultural safety into patient-oriented research.

Following the presentation, you will also participate interactive group work and a fulsome group discussion.

Speakers:

• Jimena Garcia Paniagua, BC NEIHR Indigenous Health Research Facilitator, Vancouver Island Region
• Laura McNab-Coombs, BC NEIHR Indigenous Health Research Facilitator, Interior & North Regions

Facilitator:

• Ashlyn Jensen Fisk, Manager, Indigenous Relations & Reconciliation, Health Research BC

Organized by: British Columbia Network Environment for Indigenous Health Research (BC NEIHR)

Ballroom,

Hybrid

3:10 p.m. – 4:10 p.m.

Breakout session #3b – “There is strength in numbers!” How an action group of people living with dementia developed a guide for taking collective action

The Flipping Stigma on its Ear Toolkit (flippingstigma.com) was developed by an Action Group of people living with dementia to educate others about the stigma and discrimination that many with dementia experience on a regular basis.

Following the toolkit’s completion and its success in reaching people around the world, the Action Group, in partnership with the research team, developed a “How to Guide” to share how people, especially those living with dementia, can work together to create change.

In this presentation, research team and Action Group members will present the how-to guide, and share insights about the guide’s development and what we learned about taking collective action together. 

Speakers:

• Mariko Sakamoto, Assistant Professor, school of nursing, UVIC
• Granville Johnson, Action Group Member & Patient Partner
• Lynn Jackson, Action Group Member & Patient Partner

Organized by: BC SUPPORT Unit Island Centre

Port of San Francisco / New York,

Hybrid

3:10 p.m. – 4:10 p.m.

Breakout session #3c – Building bridges, breaking silos: Fostering a knowledge mobilization network

Speaker:

• Stephanie Glegg, CHILD-BRIGHT Knowledge Mobilization Program Co-Lead, Assistant Professor at the department of occupational science and occupational therapy, faculty of medicine, University of British Columbia

Moderator:

• Linda Li, Scientific Director, BC SUPPORT Unit, Harold Robinson/Arthritis Society Chair at the department of physical therapy, University of British Columbia, and Canada Research Chair in Patient-oriented Knowledge Translation

Organized by: CHILD-BRIGHT Network

ONLINE ONLY,

Viewing in Port of Hong Kong

3:10 p.m. – 4:10 p.m.

Breakout session #3d – British Columbia – Patient-Oriented, Practice-based Research Collaboration (BC-POPRC) and the accompanying Patient Engagement Research Collaborative (PERC)

Join this panel discussion to learn how patient partners are helping guide practice-based research programs in BC.

The members of two practice-based research collaborations — BC POPRC and PERC — will discuss different ways that patients have been engaged with various competitions, some lessons learned, and how this engagement with patients could continue. The speakers will highlight the advantages of partnering with patients to build research capacity in practice settings and how this would enhance learning health system work.

Speakers:

• Christine Wallsworth, Patient Partner
• Amanda Chisholm, Senior Manager, Education & Funding Initiatives VCHRI
• Agnes (Aggie) Black, Director, Health Services & Clinical Research, and Knowledge Translation, Providence Health Care
• Kristi Coldwell, Senior Advisor for Transplant Research Advocacy at the Transplant Research Foundation of BC, and PERC Patient Partner

Facilitators:

• Larry Mróz, Patient-Oriented Service Lead, BC SUPPORT Unit
• Rhyann Fairbrother, Patient and Partnerships Coordinator

Organized by: BC SUPPORT Unit Vancouver Centre

Harbour III,

Hybrid

Time

Session information

Format & location

4:10 p.m. – 4:20 p.m.

Transition to closing session

Time

Session information

Format & location

4:20 p.m. – 4:45 p.m.

Closing remarks

Speakers:

• Stirling Bryan, Chief Scientific Officer, Health Research BC
• Leana Garraway, Co-Lead, BC SUPPORT Unit Northern Centre and Manager Health Research Institute, UNBC
• Anni Rychtera, patient partner representative in BC

Ballroom,

Hybrid

4:45 p.m. – 5 p.m.

Closing Prayer

• Elder Syexwaliya Ann Whonnock

Ballroom,

Hybrid