Putting Patients First 2024: Building learning communities
The conference advances learning communities to improve health and health research ecosystems.
Leaders in the health and health research communities, from patients to policy makers, are welcome.
There is no cost to attend.
The BC SUPPORT Unit, part of Michael Smith Health Research BC, is hosting the annual Putting Patients First conference.
Join us on November 14, 2024
Vancouver Marriott Pinnacle Downtown Hotel
1128 W Hastings St, Vancouver, BC
Watch the virtual livestream: Putting Patients First 2024 livestream. The conference broadcast will start on November 14 at 8 a.m. PT.
In-person registration is now closed.
Who can attend?
Leaders in the health and health research ecosystems, from patients to policy makers, are welcome.
This includes health-care providers, health system decision-makers, patients, people with lived experience of health issues and the health care system, health researchers, and students and trainees.
What’s new?
- Livestream link available: Join us through our virtual livestream, no registration required: Putting Patients First 2024 livestream. The conference broadcast will start on November 14 at 8 a.m.
- In-person registration has closed: We are at capacity for in-person attendance and the waitlist has closed. To watch the virtual livestream, no registration is required.
- Program available: Learn about the exciting conference sessions. View the program.
- Keynote speaker: Dr. Robert Reid is our keynote. Learn more.
Sessions in the Pinnacle Ballroom will be livestreamed and recorded.
Posters are available for viewing throughout the day.
View our photo notification form.
Time |
Event |
Location |
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7:00 a.m. – 8:00 a.m. |
Registration and breakfast |
Foyer, Pinnacle Ballroom | ||||||||||||||||
7:00 a.m. onwards |
Posters available for viewing
Posters will be displayed throughout the day:
From 10:30 a.m. to 12:45 p.m., you can join an interactive Poster Showcase and Q&A session with poster presenters in the Point Grey Room. There will be two different sessions based on poster themes.
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Various | ||||||||||||||||
8:00 a.m. – 8:15 a.m. |
Territorial acknowledgmentOpening prayer
Elder Ruth Alfred |
Pinnacle Ballroom | ||||||||||||||||
8:15 a.m. – 8:30 a.m. |
Welcoming remarks
Monica Mamut, Unit Director, BC SUPPORT Unit Linda Riches, Patient Partner |
Pinnacle Ballroom | ||||||||||||||||
8:30 a.m. – 9:30 a.m. |
Actioning learning health systemsKeynote: Dr. Robert Reid
Hear about developing learning health systems in North America. This includes using a whole-systems approach, spreading and scaling solutions, and centring equity.
Moderator: Monica Mamut, Unit Director, BC SUPPORT Unit |
Pinnacle Ballroom | ||||||||||||||||
9:30 a.m. – 10:10 a.m. |
Engaging learning health systems
Presenter: Dr. Kerry Kuluski
Learn how three Ontario hospitals deliver high-quality acute and community care. Hospital teams use new approaches that centre on patients and families. |
Pinnacle Ballroom | ||||||||||||||||
10:10 a.m. – 10:30 a.m. |
Health break |
Foyer, Pinnacle Ballroom | ||||||||||||||||
10:30 a.m. – 12:45 p.m. |
Interactive sessions
During this block, multiple sessions will run at the same time. You can choose which ones you would like to join.
In some rooms, you will join in small group activities to solve problems around important issues, including social identities, accessibility, and learning communities. Poster abstracts will also be available for viewing. There will be opportunities for networking.
Learn more about the interactive sessions.
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Various | ||||||||||||||||
12:45 p.m. – 1:45 p.m. |
Lunch |
Pinnacle Ballroom | ||||||||||||||||
1:45 p.m. – 2:45 p.m. |
Panel: Perspectives on the patient-oriented research experience
In this panel, we’ll hear from teams about the challenges, successes and lessons learned.
Moderator: Ellie Griffith, Vice President Research Programs, Michael Smith Health Research BC |
Pinnacle Ballroom | ||||||||||||||||
2:45 p.m. – 3:30 p.m. |
Selected poster presentations
Selected poster presentations:
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Pinnacle Ballroom | ||||||||||||||||
3:30 p.m. – 3:35 p.m. |
Pat Atherton Award (POR Champion) |
Pinnacle Ballroom | ||||||||||||||||
3:35 p.m. – 3:45 p.m. |
Closing remarksLisa Ridgway, Patient Partner Stirling Bryan, Chief Scientific Officer, Health Research BC |
Pinnacle Ballroom | ||||||||||||||||
3:45 p.m. – 4:00 p.m. |
Closing prayerElder Ruth Alfred |
Pinnacle Ballroom |
What are the interactive sessions?
During the interactive sessions, there will be multiple sessions running at the same time. You can choose which ones you would like to join.
Join small group activities and engage at multiple tables in a fun, game-like setting. Feedback will be collected and ideas generated from the session will be shared in a post-conference report. This takes place in the Dundarave Room.
The same session will run twice, to allow people to join at different times. If you are interested, please join just one of the two sessions:
- Session 1: 10:30 a.m. – 11:30 a.m.
- Session 2: 11:45 a.m. – 12:45 p.m.
This arts-based session will explore ways to integrate lived experience into learning communities, through interactive activities and discussions. Your contribution in the session will help create a digital tool for sharing knowledge. This takes place in the Shaughnessy Room.
The same session will run twice, to allow people to join at different times. If you are interested, please join just one of the two sessions:
- Session 1: 10:30 a.m. – 11:35 a.m.
- Session 2: 11:45 a.m. – 12:45 p.m.
C. Learning health systems in action
This session will include presentations on projects related to learning health systems. This takes place in the Pinnacle Ballroom.
This is one continuous session from 10:30 a.m. – 12:45 p.m. Project presentations include:
- Hospital at home: Focus on providing hospital-level care at home
Sean Spina and Beth - LTC-QI INFORM: A quality improvement initiative for long-term care
Matthew Fagan, Michelle Smith, Monica Lee and Kirsten Rossiter - The Kidney Check program: Providing culturally safe kidney care in Indigenous communities
Cynthia Macdonald - Acute Mental Health and Substance Use in Island Health: Engaging with patients, caregivers, staff, clinicians, and researchers
Clara Rubicam and Zoë Newson - Research engagement to strengthen the health workforce in learning health systems: Preliminary experiences with microresearch in long-term care and assisted living
The poster showcase will invite you to engage with poster presenters and participate in facilitated discussions. This takes place in the Point Grey Room.
There are two different sessions based on the poster themes:
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Group 1: 10:30 a.m. – 11:30 a.m.
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Group 2: 11:45 a.m. – 12:45 p.m.
Group 1: 10:30 a.m. – 11:30 a.m.
Poster themes:
- Chronic diseases and conditions
- Mental health and substance use
- Improving infrastructures for patient and community engagement (Part 1)
- Innovations in health care and health systems (Part 1)
Chronic diseases and conditions
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Collaborating to Support Unhoused People with Wounds
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Interior Health’s Collaboration to Rapid, Reliable STEMI Intervention
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A patient-oriented multi-modal MRI study on myalgic encephalomyelitis / chronic fatigue syndrome
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Project IMPACT (Include Messaging for Patients and Care Teams): Patient Centered Care in Paediatric Type 1 Diabetes Using Texting-Spreading in Interior Health *
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Optimizing Diabetes Care: A Community-Partnered Qualitative Study on Patients with Pre- or Mild Diabetes
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Empowering Women with Endometriosis and Adenomyosis through a bilingual, anonymous platform and Open Data outcomes
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Feasibility of the patient‐reported outcome measure for the assessment of symptom burden in pediatric chronic kidney disease “PRO-Kid” in children aged 2-7 years
Mental health and substance use
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Screening for trauma in a youth integrated care clinic (Foundry Vancouver); youth and staff experience
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Evidence in Care: A Learning Community Approach to Rapid Evidence Reviews
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Development of a unique advisory committee for mental health service improvements
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Partnering with People Who Use Drugs to Create Safe Inclusive Health Care Spaces
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Learning from Recovery College Peer Educators: A Participatory Research Project
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Building a path towards patient-centered program success: Community perspectives on indicators of program success for an Individual Placement and Support (IPS) program for people with persistent and multiple barriers to employment in British Columbia, Canada.
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Let’s talk about pain: A qualitative exploration of ways to introduce the current model of chronic pain to patients.
Improving infrastructures for patient and community engagement (Part 1)
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Bringing lived experience to peer review: Collaborative development of a learning module
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Rising Up: Collaborating with Chinese Families and Communities for Parenting Resources
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Empowering the Citizen Patient
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NEOCATS: Patient-led Resource Development for Clinical Trials
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Engaging with patient and family partners to develop education materials
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Transforming Research with Patients First: Building Capacity through POR eLearning
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Bridging the Gap: Implementing the Transitional Care Approach for New Hemodialysis Patients
Innovations in health care and health systems (Part 1)
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Every Move Matters: Royal Inland Hospital Patient Activation Team Keeps Patients Moving Forward
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The Head and Neck Cancer Application for Patients and their Partners (HANC APP) Study: Co-designing through patient partner workshops
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Co-developing a Period Pain Awareness Campaign with Youth as Research Partners
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Implementing Patient-partnered Workshops in Regional Areas of British Columbia to Enhance Clinician Confidence in SCI Care
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Get the Message? Improving Access to Virtual Healthcare for Older Adults Through Patient Partner Collaboration *
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Transforming Access to Pediatric Rheumatology Care for Remote and Rural Communities: Findings from the Northern BC Project *
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Design and Implementation of a Patient Advisory Council (PAC) for the Department of Anesthesia at Providence Health Care
* These posters were also selected for presentations and their teams will also present them at 2:45 p.m in the Pinnacle Ballroom.
Group 2: 11:45 a.m. – 12:45 p.m.
Poster themes:
- Indigenous health improvement
- Care and caregiving
- Improving infrastructures for patient and community engagement (Part 2)
- Innovations in health care and health systems (Part 2)
Indigenous health improvement
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Putting Indigenous patients first: Lessons learned from improving the quality of nutrition care in a tertiary hospital in BC
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Prenatal Opioid Exposure and Neonatal Abstinence Syndrome: A Collaborative Research Project with First Nations Communities
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Identifying social determinants of health and quality of life information for use in health and social services in Indigenous communities
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The Arthritis Community Learning Circle: A Learning Community Advancing Equitable Arthritis Care for Indigenous Peoples
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Indigenous Knowledge Translation at the Indigenous Wellbeing Gathering Conference
Care and caregiving
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Raise Your Voice: How to Increase the Effectiveness of Resident and Family Councils in Long-Term Care Homes in British Columbia, Canada.
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Qualitatively Exploring Opportunities to Support Older Women’s Sexual Health and Wellbeing in Fraser Health Authority’s Assisted Living Sector
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Understanding the lived experience of participating in exercise in youth with cerebral palsy and their caregivers
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The effects of caregiving: setting up our research framework
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Exploring perceptions on the concerns, challenges, and opportunities around sedentary behaviour awareness and reduction in long-term care homes
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Beyond the Binary in BC: A Continuous, Collaborative, Commitment to Supporting Inclusive Women’s Health Research
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Evidence-based Cost Accounting for Long-term Care Beds in Home-based and Institutional Settings (Work in Progress)
Improving infrastructures for patient and community engagement (Part 2)
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Organizational Factors that Foster Engagement-Capable Environments: A Study of Health Research Networks
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Peer-to-Peer as a Patient Partner Recruitment Strategy in a National Kidney Health Research Network
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Collaborating with Patients to Create UBC Health’s Position Statement for Patient and Community Engagement in Research
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A Patient and Family Cost Calculator called GEOFFE
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Leading from the Edge: Rural Patients & Communities Advocating, Designing & Influencing Digital Patient Tools
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Characterizing the impacts of engaging with patient advisory councils on long-term recovery for sepsis survivors and their families
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Power and Perspectives: Using Equity Walk Throughs to Inform Equity-Oriented Approaches at BC Cancer Vancouver
Innovations in health care and health systems (Part 2)
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Improving Patient Involvement through Human Centered Design
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An analysis of client data by Open Arms Patient Advocacy’s learning community to improve healthcare accessibility and navigation in Alberta
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A Day in the Life of a Longhauler: Amplifying Experiences of Long COVID Patients through Photovoice Methodology
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Designing a patient-first virtual service
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Peer support for people with traumatic brain injury within community-partnerships: a mixed-methods investigation of feasibility and impact
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Conducting mixed-methods research with individuals with traumatic brain injury: Reflections and considerations
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Co-Creating Care: Enhancing Advance Care Planning in Oncology Through Patient & Healthcare provider partnerships
Keynote speaker: Robert Reid
Hazel McCallion Research Chair in Learning Health Systems, Institute for Better Health
Senior Vice President, Science, Trillium Health Partners
Dr. Robert Reid is a global expert and thought leader in population health, learning health systems and primary care.
He is best known for his work in developing and evaluating a patient-centred medical home at Group Health Cooperative, now Kaiser Permanente. Robert is currently providing expertise in the redesign of Ontario’s health-care system through the Ontario Health Teams initiative.
With the Institute for Better Health, Robert focuses on generating new ways to engage, design, deliver and finance health care. He also creates partnerships with patients, caregivers and communities to improve population health.
Plenary speaker: Kerry Kuluski
Dr. Mathias Gysler Research Chair in Patient and Family Centered Care, Institute for Better Health, Trillium Health Partners
Associate Professor, Institute of Health Policy, Management and Evaluation, University of Toronto
In her research, Dr. Kerry Kuluski focuses on care quality challenges in our health-care system, including care transitions using multiple methods. She is also exploring new strategies to better collect, make sense of, and act on patient experience data.
She works in partnership with patients, families and care providers to co-design strategies and improve health-care experiences. She launched a new course at the University of Toronto on patient and caregiver engagement in research. Kerry also co-created a seven-part virtual learning series on engagement and co-design with and for patients, caregivers and communities.
Before her current roles, Kerry was a scientist at Sinai Health System, where she grew her program of research on the patient and caregiver experience. She completed her PhD in health services research at the University of Toronto and a master’s in social work at Lakehead University.
Opening and closing prayer: Elder Ruth Alfred
Ruth is of Mamtagela ancestry through her Grandfather Price Bruce, Grandmother Julia Nelson-Bruce and mother Florence Bruce-Stadnyk, and Ukrainian through her father Andrew Stadnyk.
Ruth was born and raised in Alert Bay, marrying into the Namgis Nation. She left Alert Bay in 1986 to find work when the fishing industry collapsed. She raised two daughters as a single parent, eventually moving to North Vancouver in 1990 after both girls went on their own. Ruth has six grandchildren and three great-grandchildren. She and her partner have lived in North Vancouver for 38 years.
Ruth worked various jobs in retail until becoming the Elder Program Coordinator at the Vancouver Aboriginal Friendship Centre for two years. She worked at the Pacific Association of First Nations Women for 15 years until her retirement in 2017. In 2018, Ruth became a member of the Elder Knowledge Keepers at Indigenous Health and Wellness, which she was a part of until recently. She was the Elder in Residence at Heatley Community Health Centre and Ravensong Clinic, doing one-on-one sessions with patients.
Ruth also does patient visits at Lions Gate Hospital and Vancouver General Hospital. For over 23 years, she worked as an outreach worker for Indigenous and non-Indigenous people in the Downtown Eastside, assisting with housing, medical assistance and support at hearings for Residential School Survivors after helping them with their claim forms for restitution.
Ruth attended North Island Secondary School, the North Island College Early Childhood program and the Native Education College Office Administration Program.
What are learning communities?
Learning communities are groups of people with shared interests and goals, multiple perspectives, experiences, and expertise that meaningfully collaborate to solve health and health system problems.
Are there opportunities to share my work?
Submissions are now closed. Successful teams have been notified.
This year, we were thrilled to receive over 90 submissions for the conference.
68 submissions met the eligibility criteria. A panel reviewed the 68 submissions and selected 55 to share as posters at the conference.
Frequently asked questions (FAQ)
I want to watch the virtual livestream and will not attend in-person. Do I need to register?
No, registration is only required for in-person attendees.
The sessions in the Pinnacle Ballroom will be livestreamed. Watch the virtual livestream through this link: Putting Patients First 2024 livestream. The conference broadcast will start on November 14 at 8 a.m. PT.
Where will the conference take place?
Putting Patients First will be hosted in Vancouver, BC, at the Vancouver Marriott Pinnacle Downtown Hotel. If you plan to attend in-person, you must register.
Vancouver Marriott Pinnacle Downtown Hotel
1128 W Hastings St, Vancouver, BC
https://www.marriott.com/en-us/hotels/yvrdt-vancouver-marriott-pinnacle-downtown-hotel/overview/
Some of the conference sessions will be livestreamed. If you only plan to watch the livestream, you do not need to register. More information on virtual sessions will be available in the coming weeks.
Will the sessions be recorded?
Photography, audio or video recording will take place in all designated conference spaces.
If you do not wish to be included, please notify staff at the registration desk. A modified name tag and/or lanyard will be provided to those people who do not want to be recorded. Specific seating will also be provided in the main presentation room for people who do not want to be recorded. Read the full AV notice.
Some conference sessions will be recorded and made available following the event.
Will masks and hand sanitizers be provided at the event?
We are encouraging all attendees and staff to wear masks to protect themselves and others. Masks and hand sanitizers will be available at the check-in desk.
Is this a fragrance-free event?
Yes. Please refrain from wearing cologne, perfume or other scented products.
Where can I learn about previous years of PPF?
Contact us
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Questions?
no position
ppf@healthresearchbc.ca
no phone