Using an equity-informed approach to enhance care for children and youth with a neurological condition in British Columbia

Neurological conditions are a major concern for children and youth, with the potential to affect both physical and mental health. These conditions occur as a result of injury, genetics, and exposures which disrupt the normal functions regulated by the nervous system. Despite the reported rates of neurological conditions in Canada, there are no current estimates of children and youth in British Columbia (BC) living with these conditions. Further, there is a lack of understanding on how this population accesses health care. Therefore, we want to quantify the rate of neurological conditions by exploring the current prevalence of in the BC pediatric population. Second, we will identify the barriers to accessing neurological care, focusing on the social determinants of health. Lastly, we seek to address inequities by investigating the implementation of nursing-led care (i.e., assessment, education, and intervention) for children waiting to access neurological care. This work is equity-oriented, with a focus on underserved groups. Research will be performed at UBC and BC Children’s Hospital with input from key stakeholders across BC to enact knowledge translation, seeking to inform practice and create system level interventions.