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The Modernization of Clinical Trials Conference

…deemed a clinical trials community success. Many thanks have been extended to our 54 speakers, patient partners, moderators, coordinating centre (Venue West) and the registrants.   Keynote Address Recording https://www.youtube.com/watch?v=2VRmIHRS96o&list=PLnA2gDdotPlDnbGhLPpYw5iHRlRGer_-M&index=2…

Library shares experiences of kids with brain-based disabilities

…opportunity >   References Patient experience as evidence, with Miles Sibley. (2020). Matters of Engagement. Retrieved Mar 4, 2024 from https://mattersofengagement.com/patient-experience-as-evidence-with-miles-sibley/ Patient experience library. Retrieved Mar 4, 2024 from https://www.patientlibrary.net/cgi-bin/library.cgi…

ASK JEAN: What is the ICH Renovation?

For further information on E8(R1), including the E8(R1) Concept Paper and Business Plan, please refer to the E8(R1) page at https://www.ich.org/page/efficacy-guidelines. For further information on E6(R3), including the E6(R3) Concept…

Mechanisms of X-linked Dyskeratosis congenita

…called dyskerin, which helps maintains chromosomes, in addition to its essential function of manufacturing protein synthesis machinery. A symptom-free mother carrying a DKC1 mutation has a 50% chance of transmitting…